A few years ago I had a stroke, at "such a young age" it through the hospital for a loop. Recently I have learned that my children are have the same problem with their heart that I do. Which can leave them to have a stroke as well ...
Basically they have an extra hole in thier hearts, one that decide not to close. Some cardio docs will tell you not to worry, others will tell you it needs to be taken care of, & some will say "we need more studying" on this.

Coming from the surving point, I lost it. I cried & bawled. The one thing I tried my hardest not to do. I got my children ready for this ... "no matter what you will have good life's. You will be able to do what you can & want to." ... But what does mom do? I couldn't even stay in the room when they found the first one ... I went into the hall & collapsed.
Sitting on the floor, crying because I know what they will end up going though. The test, the suffering & the loss. I had my boys hugging & telling me it's ok ... because they believed every thing I told them. Because I didn't tell them the rest of it ...

They are children, they don't need to know that part, not now. They don't need to know they will test their blood for clots & run them from head to toe for them in a CAT. I sincerely hope they never have that shot, because its horrid & extremely painful. The meds alone are enough to drive you nuts. Then there is the other BS that goes with it.

I am told to watch them. Watch ... watch them laugh, smile, cry, live, make relationships, find friends and so much more. Watch all of this occur, knowing that if they have a stroke they will lose those memories or worse die? But all I can do is "watch." How can any person just say that to you when they have no idea what it means?

I watched them today, learning to play guitar ... learning algerbra ... learning to fix their bikes ... learning to building a relationship with someone. Later in life, will they remember all this?

5 Positive things:

(sorry ... but I am far to sad)